Neurofibromatosis: A practical guide across the lifespan

Neurofibromatosis: A practical guide across the lifespan

About: Neurofibromatosis (NF) is a complex condition that demands comprehensive care throughout one's life, and this session has been meticulously crafted to equip you with practical guidance and essential insights for this journey. Our aim is to provide you with the knowledge and tools needed to deliver multidisciplinary care to NF patients effectively. Whether you're a healthcare professional or support those with NF, this event promises to enhance your understanding of this condition.

Mode of delivery: We offer you the flexibility to choose your participation mode, with options for both in-person and online virtual attendance.

Teams link will be emailed by NF team before the date of program to the registered email.

This program will be recorded.

Intended audience: General practitioners, maternal child health nurses, and anyone involved in the care of individuals with neurofibromatosis (NF).

Date & Time: Friday 9th February 2024 from 8:30am to 12:30pm (registration from 8am) in Ella Latham Auditorium, Ground floor, Royal Children's Hospital

Enrolments close: 2nd February

Intended audience: General Practitioners, MCHN, RCH staff

Cost:  $50 (includes morning tea)

Course Outline: 

  • Case studies and lived experience of NF including interactive elements
  • NF in childhood and the specialised care it demands
  • Challenges of NF in young adulthood and schooling
  • Role of genetics and management of NF in adults
  • Knowledge about the impact of NF in brain and soft tissue tumours and cosmesis

Total time:  4 hours

CPD points:  equivalent to 4 hours

Refund eligibility:  No refunds for cancellations after 27th January.

Contact: gabriel.dabscheck@rch.org.au 

Course administrators: Dr Gabriel Dabscheck, Kylie Clark and Jessie Mackay

 


Course administrator: Jessie Mackay